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Updated as of Feb 01, 2009
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The Provincial Health Ethics Network (PHEN) of Alberta is a non-profit organization which provides resources on addressing ethical issues related to health. PHEN does not advocate for or take positions on particular ethical issues; its role is to facilitate thoughtful, informed and reasoned ethical decision-making from all perspectives.

 

PHEN Operations

Effective April 1, 2009, Alberta Health and Wellness ceased financial support to PHEN, citing financial constraints and a greater focus on governance over implementation. Alberta Health Services recently indicated that it will no longer be able to sustain the funding it has generously provided to PHEN over the past fiscal year, due to its own budget constraints and a desire to build internal capacity to address ethics issues. This will result in a very significant cut in funding to PHEN beginning April 2010. Rather than ceasing operations completely, the PHEN Board has decided to pursue an alternative, scaled-down, primarily volunteer-driven model that will hopefully allow us to maintain the important structure of an independent ethics resource for the province, albeit with significantly slimmed down operations. Unfortunately, this will inevitably mean the loss of some PHEN staff members as well as a reduction in services offered. The extent of these changes have yet to be determined. We very much appreciate the support and encouragement we have received over the past year.


New Resource to Assist With Making Difficult Health Care Decisions

PHEN and the Alberta Collaborative Initiative on Decision-Making at the End of Life have developed a fantastic new resource for members of the public, patients, long-term care residents and their families to help with decision-making in times of serious illness or injury. Comfort, Hopes and Wishes: Making Difficult Health Care Decisions is intended to provide clear information about medical treatments and ethical issues that may arise during these difficult times. To view a draft copy of this resource and provide feedback, please click here.


Health Ethics Week 2010

Health Ethics Week, March 1- 7, 2010, is a provincial event for health organizations, ethics committees and community groups to host events and coordinate initiatives that explore ethical issues related to health. This year's theme is Hope and Healing: Creating a Moral Climate for Well-Being. For information on the Week and to view events planned in your area, please click here.


New Adult Guardianship and Trusteeship Act

The Adult Guardianship and Trusteeship Act has recently replaced the Dependent Adults Act in Alberta. It offers new options for adults who need help in making personal and/or financial decisions and more safeguards to protect vulnerable adults who can no longer make their own decisions. To find out more about this new Act and how it may meet your needs or those of a loved one, please click here.


New Mental Health Amendment Act

Changes to the Mental Health Act came into effect on September 30, 2009. The Mental Health Amendment Act broadens the criteria for involuntary admission to hospital, requires that a hospital discharge summary and any recommendations for treatment be sent to the individual’s family doctor, if known, and expands the responsibilities of the Mental Health Patient Advocate. On January 1, 2010, community treatment order provisions also come into effect under this amended Act. To find out more about this new Act and how it may affect you, please click here.

 

Review of Alberta Health Services Draft Code of Conduct

In November 2009, PHEN hosted a teleconference discussion to review the Alberta Health Services Draft Code of Conduct – October 28 from an ethics perspective and, in response to a request from the AHS Ethics & Compliance Office, provide feedback to Alberta Health Services. Participants (including comments submitted via email) included eight ethics committee members, front-line health care workers and ethics services staff, spanning various professions. To view the summary document submitted to AHS, please click here

 


Review of Draft Code of Conduct of the College of Physicians and Surgeons of Alberta

As part of its provincial consultation process, the College of Physicians and Surgeons of Alberta (CPSA) asked PHEN to review its Draft Code of Conduct from an ethics perspective and provide feedback to the College. In September 2009, we invited PHEN members, ethics committee members and other interested individuals to submit feedback by email or attend a teleconference meeting to discuss the document. PHEN then compiled this feedback in a summary and submitted it to the CPSA. To read the summary, please click here.


New DVD Presentations for Health Organizations and Ethics Committees

PHEN is pleased to announce the availability of two new DVD resources. Spirituality in Health Care: Dialogue, Decisions and Duties with Daniel Sulmasy, Franciscan Friar and Associate Director of MacLean Center for Clinical Medical Ethics, addresses how caring for the spiritual needs of patients goes a long way in nurturing respect and providing opportunities for improved care. Global Health Ethics: Duty, Justice and Responsibility features James Dwyer, Associate Professor of Bioethics and Humanities at the State University of New York. It examines our personal, professional and social responsibilities toward the health of others, and how we can focus more attention on issues of justice that arise at the local, national and global levels. For more info and to purchase these newly developed resources, please click here.

 

Survey of Alberta Clinical Ethics Committees: Report of Findings

In January and February 2009, PHEN surveyed Alberta's clinical ethics committees/teams/interest groups with the aim of identifying strengths and challenges in the way that clinical and organizational ethics services are delivered in the province. The responses were compiled and used to develop several options for the structure of clinical ethics services in Alberta. This information was outlined in a report that was distributed to Alberta ethics committees and submitted to Alberta Health Services for their consideration as they review the ethics structures and processes in the province. If you would like to receive a copy of this report, please contact Amy Middleton at middleton@phen.ab.ca.

 

 

Report: When Healthcare Providers Experience Moral Distress

In 2008, PHEN and the College and Association of Registered Nurses of Alberta (CARNA) hosted two joint conferences to create a dialogue around moral distress experienced by health care providers. During the September 2008 conference in Edmonton, attendees participated in The World Café, a unique conversational process that draws on participants’ wisdom and diversity to see new ways to make a difference in their work and lives. These discussions were compiled in a report that can be viewed here.


Ethics in Healthcare: Building Competence For Health Professionals

PHEN is pleased to release this acclaimed 12-DVD set for purchase. Ethics in Health Care provides an intense introduction to important issues in the field from some of its most renowned experts. This tool is recommended for clinicians, health administrators, members of ethics committees and anyone interested in furthering their understanding of compelling moral questions in health care. It can be used for individuals for self-study; by organizations for purchase in bulk to serve as a curriculum to provide training to staff in introductory bioethics; or by libraries seeking public performance rights. For more details, download a brochure here.

The following are recent additions to the PHEN library. These materials are available on loan to all residents of Alberta and PHEN members from across Canada.


 

The Essential Hospital Handbook: How to Be an Effective Partner in a Loved One's Care

by Patrick Conlon, Yale University Press, 2009

 

Hospitalization is often as dismaying and frightening for family members as it is for the patient. And despite a heartfelt desire to understand what is happening and to comfort a sick or injured loved one, too often relatives and friends feel helpless and marginalized by the hospital system. This valuable book is the first to assist families and friends of adult patients to navigate the unfamiliar and intimidating territory of the hospital. It spells out in the clearest terms how a family can form a partnership with medical providers to ensure the best patient care possible. The book offers a comprehensive look at emergency rooms, surgery, recovery and the hospice as it takes readers on a tour of the hospital. Such things as living wills, drugs, hospital equipment and even slang are examined to give a well-rounded picture of what people might encounter. While directed at caregivers and families, the book can be just as helpful for patients.

   

The Ethics of Consent: Theory and Practice

Edited by Franklin Miller and Alan Wertheimer, Oxford University Press, 2009

 

Consent is a basic component of the ethics of human relations, making permissible a wide range of conduct that would otherwise be wrongful. Consent marks the difference between slavery and employment, permissible sexual relations and rape, borrowing or selling and theft, medical treatment and battery, participation in research and being a human guinea pig. This book assembles the contributions of a distinguished group of scholars concerning the ethics of consent in theory and practice. Part One addresses theoretical perspectives on the nature and moral force of consent, and its relationship to key ethical concepts, such as autonomy and paternalism. Part Two examines consent in a broad range of contexts, including sexual relations, contracts, selling organs, political legitimacy, medicine, and research.

   

Who Lives?

A play by Christopher Meeks, Lulu.com, 2006


A play that explores the 1960s anonymous citizens committee that determined the life-or-death fate of kidney patients applying for dialysis. This committee of ordinary citizens in Seattle debated over which kidney disease victims to choose for an experiment with something new: a kidney dialysis machine. If the experiment worked, a small number of people would live instead of surely die from kidney failure. But who among the selection pool lives? How will the committee choose? Based on that premise and creating his own committee, playwright Christopher Meeks centers the action on one person, attorney Gabriel Hornstein, who desperately needs what the committee offers. In a review of the play in Los Angeles, the LA Weekly wrote, "Christopher Meeks takes this factual scenario and transforms it into a thought-provoking drama, which relates a timely story about both ethics and morals.... Meeks' script is smartly written.



 
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